101
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From principles to practice: implementing genetic
database governance
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Susan M.C. Gibbons
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111
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Mapping the regulatory framework for human genetic
databases in England and Wales
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Jane Kaye and Susan M.C. Gibbons
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131
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Tissue samples as ‘gifts’ for research: a qualitative
study of families and professionals
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Mary Dixon-Woods, Debbie Cavers, Clare J. Jackson,
Bridget Young, Joanne Forster, David Heney and Kathy Pritchard-Jones
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151
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Certainty is absurd: meeting information security
requirements in laws on population genetic databases
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Hördur Helgi Helgason and Susan M.C. Gibbons
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169
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Social inclusivity vs analytical acuity? A qualitative
study of UK researchers regarding the inclusion of
minority ethnic groups in biobanks
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Andrew Smart, Richard Tutton, Richard Ashcroft,
Paul Martin, Andrew Balmer, Richard Elliot and
George T.H. Ellison
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191
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Book Review: The Ethics and Governance of Human
Genetic Databases: European Perspectives,
eds Matti Häyry, Ruth Chadwick, Vilhjálmur Árnason
and Gardar Árnason
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Renate Gertz
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©2007 A B Academic Publishers